By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 12 July 2021 Photo: flickr / agilemktg1 About 30 million people in the EU and USA, respectively, suffer from a rare disease. Driven by European legislative requirements, national strategies for the improvement of care in rare diseases are being developed. Read the paper at https://ojrd.biomedcentral.com/articles/10.1186/s13023

https://www.lupop.lu.se/article/how-design-registry-undiagnosed-patients-framework-rare-disease-diagnosis-suggestions-software-data - 2025-06-29

By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 13 July 2021 Photo: Pixabay / Colin Behrens In a prospective study, we sought to determine acceptability of linkage of administrative and clinical trial data among Canadian patients and Research Ethics Boards (REBs). The goal is to develop a more harmonized approach to data, with potential to improve clinical trial conduct thr

https://www.lupop.lu.se/article/canadian-prospective-study-linkage-randomized-clinical-trial-cancer-and-mortality-registry-data - 2025-06-29

By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 23 June 2021 Du kommer att samla in och ställa samman kunskap om forskningsdata och dess hantering i biobankskohorter, såväl i Umeå som nationellt. Målet är att peka ut förbättringsområden, för förbättrade och förenklade flöden för forskningen. Parallellt kommer du att arbeta med att ge konkret stöd till forskare inom olika bi

https://www.lupop.lu.se/article/umea-universitet-soker-forskningssamordnare-med-fokus-pa-processer-biobankers-forskningsdata - 2025-06-29

By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 24 June 2021 Photo: Pixabay / Leo2014 Detta forskningsprojekt syftar till att undersöka om det finns patientgrupper som behöver extra mycket resurser, och vad som i så fall skiljer dessa patienter från patienter som inte behöver lika stora resurser. Läs mer om studien på https://www.lupop.lu.se/resursfordelning-och-utfall-inom

https://www.lupop.lu.se/article/ny-studie-resursfordelning-och-utfall-inom-intensivvarden - 2025-06-29

By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 2 August 2021 Photo: Pixabay / Gerd Altmann Vi avser i detta projekt undersöka om vi med maskininlärning (artificiell intelligens, AI) kan träna en dator att känna igen mönster i akutpatienters data, såsom tidigare sjukdomar, läkemedelsanvändning, undersökningsresultat och sociala faktorer, för att sedan kunna förutsäga vilken

https://www.lupop.lu.se/article/ny-studie-maskininlarning-battre-diagnostik-och-behandling-av-vuxna-patienter-som-soker-sjukvard-pa - 2025-06-29

By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 2 August 2021 Photo: Pixabay / Brian Merrill We are looking for an assistant researcher in Epidemiology for work that is linked to a thematic collaborative initiative on improved pandemic preparedness that has received internal funding from Lund University 2021 – 2024. The initiative is a truly interdisciplinary collaboration

https://www.lupop.lu.se/article/new-position-assistant-researcher-epidemiology - 2025-06-29

By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 4 August 2021 Photo: Pixabay / Sasin Tipchai Tonsil surgery is a daily procedure at Ear, Nose and Throat (ENT) departments as well as ENT practices. Despite national tonsil guidelines in Denmark, no national survey has been introduced. Read the full paper here.

https://www.lupop.lu.se/article/first-experiences-implementation-swedish-tonsil-register-denmark - 2025-06-29

By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 5 August 2021 Photo: Wikimedia Commons / Søren Sigfusson The Nordic countries are Denmark, Finland, Iceland, Norway, and Sweden and comprise a total population of approximately 27 million. The countries provide unique opportunities for joint health registry-based research in large populations with long and complete follow-up,

https://www.lupop.lu.se/article/nordic-health-registry-based-research-review-health-care-systems-and-key-registries-0 - 2025-06-29

By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 5 August 2021 Image from pixabay / pearson0612 En studie rörande effekter av åldersspecifika rekommendationer i samband med Covid-19-pandemin, i vilken flera forskare från Lunds universitet medverkat, har nyligen publicerats "pre-print" och i samband med detta uppmärksammats i diverse media. Preprint-artikeln finns att läsa på

https://www.lupop.lu.se/article/covid-forskning-fran-lunds-universitet - 2025-06-29

By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 11 August 2021 Photo: Pixabay / Arek Socha Quality improvement programs and clinical trial research experienced disruption due to the coronavirus disease 2019 (COVID-19) pandemic. Vascular registries showed an immediate impact with significant declines in second-quarter vascular procedure volumes witnessed across Europe and th

https://www.lupop.lu.se/article/impact-covid-19-pandemic-vascular-registries-and-clinical-trials - 2025-06-29

Published 16 May 2018 Ny registerstudie från Lunds Universitet Läs Aftonbladets rapportering här, eller gå direkt till publikationen i Plos one.

https://www.lupop.lu.se/article/unga-som-ater-p-piller-kan-ma-samre-andra - 2025-06-29

By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 11 August 2021 he Department of Public Health, Faculty of Health, Aarhus University invites applications for one to three positions as full professor in research fields of relevance for the Department of Public Health including research related to Biostatistics, Epidemiology, General Practice, Nursing, Public Health Science, S

https://www.lupop.lu.se/article/open-position-professor-department-public-health - 2025-06-29

By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 12 August 2021 Photo: Pixabay / Colin Behrens Prediction models are useful tools in the clinical management of colon cancer patients, particularly when estimating the recurrence rate and, thus, the need for adjuvant treatment. However, the most used models (MSKCC, ACCENT) are based on several decades-old patient series from cl

https://www.lupop.lu.se/article/accurate-population-based-model-individual-prediction-colon-cancer-recurrence - 2025-06-29

By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 12 August 2021 Photo: Pixabay / Gerd Altmann Den 11 augusti höll regeringen pressträff för att presentera resultatet av utredningen Organisation, styrning och finansiering av forskningsinfrastruktur. Utredningen har letts av Tobias Krantz och föreslår olika sätt att utveckla och stärka svensk forskningsinfrastruktur, bland ann

https://www.lupop.lu.se/article/utredning-foreslar-ny-myndighet-att-samla-digital-infrastruktur - 2025-06-29

By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 16 August 2021 An analysis of the Patient-Reported Outcome Measures Pilot from the Australian Orthopaedic Association National Joint Replacement Registry Read the paper at https://journals.plos.org/plosone/article?id=10.1371/journal.pone.02541…

https://www.lupop.lu.se/article/are-responders-patient-health-surveys-representative-those-invited-participate - 2025-06-29

By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 16 August 2021 Kidney biopsy registries all over the world benefit research, teaching and health policy. Comparison, aggregation and exchange of data is however greatly dependent on how registration and coding of kidney biopsy diagnoses are performed. This paper gives an overview over kidney biopsy registries, explores how the

https://www.lupop.lu.se/article/coding-practice-national-and-regional-kidney-biopsy-registries - 2025-06-29

By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 17 August 2021 The main purpose of arthroplasty registries is to collect information on patients, techniques, and devices to monitor and improve the outcome of the specific procedure. This study analyses the role played by registries in the orthopedic research community and describes publication trends, characteristics, and pa

https://www.lupop.lu.se/article/rise-registry-based-research-bibliometric-analysis - 2025-06-29

By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 17 August 2021 Cancer registry data, supplemented by patient surveys, can provide a broader understanding of the quality of care and financial impacts of breast cancer among young women. Read the full paper at https://doi.org/10.1016/j.evalprogplan.2021.101967

https://www.lupop.lu.se/article/utility-linking-survey-and-registry-data-evaluate-interventions-and-policies-address-disparities - 2025-06-29

By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 18 August 2021 Photo: Pixabay / Barroa_Artworks Our study found responder bias for age, but it did not exist for sex. Linking our sample frame to different national data registries, we determined that the characteristics of our non-responders were different from our responders on type of DM, CCI and SES. Read the paper at http

https://www.lupop.lu.se/article/danish-diabetes-musculoskeletal-cohort-non-responder-analysis-electronic-survey-using-registry-data - 2025-06-29

By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 18 August 2021 Causal and prediction research usually require different methods, and yet their findings may get conflated when reported and interpreted. The aim of the current study is to quantify the frequency of conflation between etiological and prediction research, to discuss common underlying mistakes and provide recommen

https://www.lupop.lu.se/article/prediction-or-causality-scoping-review-their-conflation-within-current-observational-research - 2025-06-29