Published 8 February 2021 Sverige var först i Europa med att lansera en nationell dataportal för forskning om covid-19. Portalen har växt i takt med att fler forskningsprojekt har tillgängliggjort sina data, nya projekt har startat och nya datatjänster etablerats. Scilifelab driver portalen i samverkan med Vetenskapsrådet. Den svenska covid-19-dataportalen växer - Vetenskapsrådet (vr.se)

https://www.lupop.lu.se/article/den-svenska-covid-19-dataportalen-vaxer - 2025-05-07

Published 8 February 2021 The relative new subspecialty 'cardio-oncology' was established to meet the growing demand for an interdisciplinary approach to the management of cancer therapy-related cardiovascular adverse events. In recent years, specialised cardio-oncology services have been implemented worldwide, which all strive to improve the cardiovascular health of cancer patients. However, limi

https://www.lupop.lu.se/article/oncor-design-dutch-cardio-oncology-registry - 2025-05-07

Published 8 February 2021 The acquisition rate during 2012–2018 was compared with Swedish national databases, while registered data in 89 selected variables (67 mandatory) was compared with medical records of 1860 randomly selected patients from all bariatric centers (n = 39–43) reporting to SOReg. The evaluation was done by 1 independent observer. Completeness of data in the entire registry for t

https://www.lupop.lu.se/article/high-acquisition-rate-and-internal-validity-scandinavian-obesity-surgery-registry - 2025-05-07

Published 9 February 2021 The premise of Open Science is that research and medical management will progress faster if data and knowledge are openly shared. The value of Open Science is nowhere more important and appreciated than in the rare disease (RD) community. Research into RDs has been limited by insufficient patient data and resources, a paucity of trained disease experts, and lack of therap

https://www.lupop.lu.se/article/case-open-science-rare-diseases - 2025-05-07

Published 17 February 2021 FCR data are based on independent cancer report forms (CRFs) from both clinicians and pathologists. Data from patients diagnosed with CRC during a randomized, population-based CRC screening program between 2004 and 2012 were extracted from the FCR and compared to data extracted from the original clinical patient records of these individuals by two gastrointestinal surgeo

https://www.lupop.lu.se/article/accuracy-finnish-cancer-registry-colorectal-cancer-data-comparison-between-registry-data-and - 2025-05-07

By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 17 February 2021 Den 10 februari höll SND ett webbinarium om verksamhetsarkitektur och forskningsdata. Webbinariet anordnades av Monica Lassi (Lunds universitet) och Mikael Wettercrantz (Karolinska institutet). De berättade om metoder och erfarenheter av att skapa överblick inom sina respektive verksamheter, och det nationella

https://www.lupop.lu.se/article/lokalt-projekt-blev-nationellt-samarbete-okad-samsyn-inom-forskningsdataomradet - 2025-05-07

By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 18 February 2021 I den årliga öppna utlysningen välkomnar Formas ansökningar inom rådets tre ansvarsområden – miljö, areella näringar och samhällsbyggande. Syftet med utlysningen är att möjliggöra för forskare att angripa forskningsbehov som de själva identifierat. Utlysningen öppnar för ansökningar 25 februari. Sista ansöknin

https://www.lupop.lu.se/article/formas-arliga-oppna-utlysning - 2025-05-07

By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 25 February 2021 Umeå universitet hävdar att man äger den forskningsdata som lärosätets forskare tar fram. SULF menar tvärtemot att universitetet inte har någon äganderätt till datan. Frågan har varit uppe till central förhandling som slutat i oenighet. Läs mer på https://universitetslararen.se/2021/02/25/umea-universitet-vill

https://www.lupop.lu.se/article/umea-universitet-vill-aga-forskares-data - 2025-05-07

Published 18 April 2018 Registration required only for those who want coffee during the break. Tomorrow's seminar will include presentations on Lund University biobank as well as EpiHealth. Read more at lupop.lu.se or facebook.com.

https://www.lupop.lu.se/article/lupop-seminar-biobanks-and-epihealth - 2025-05-07

By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 26 February 2021 Join in on a conversation with Professor Per Ambrosiani from the Department of Language Studies and Sanna Isabel Ulfsparre, librarian at the Umeå University Library. The conversation covers what counts as data, and how you make research data accessible. How does it feel to make data accessible to the world and

https://www.lupop.lu.se/article/enabling-research-research-data-future-use - 2025-05-07

Published 2 March 2021 Comorbidities often play an important role in health outcomes and survival. They may also influence the relationship between various exposures and other health outcomes as well as quality of life for a given condition. In epidemiology, two main approaches to adjust for comorbidity can be discerned: (I) adjusting for separate disorders or (II) creating a numeric index that ca

https://www.lupop.lu.se/article/adaptation-charlson-comorbidity-index-register-based-research-sweden - 2025-05-07

Published 3 March 2021 The aim of this study was to give a collective overview on all available data sources on bladder cancer patients in the Nordic countries including the amount of detail and coverage. Which data are available in central registries on bladder cancer patients in the five Nordic countries: Scandinavian Journal of Urology: Vol 0, No 0 (tandfonline.com)

https://www.lupop.lu.se/article/which-data-are-available-central-registries-bladder-cancer-patients-five-nordic-countries - 2025-05-07

Published 4 March 2021 It is common for conclusions of empirical studies to depend on multiple significant outcomes. This practice may seem reasonable, but it has some unintended effects. In particular, the compound Type I error rate for multiple studies (the likelihood of concluding that an effect exists when it does not) can be much lower than that of the individual studies. This in itself is no

https://www.lupop.lu.se/article/reversing-bonferroni - 2025-05-07

Published 9 March 2021 Given the increasing availability of large data set, small single‐institutional series raise decreasing attention. Rapid expansion of technology from electronic medical records to easily accessible internet access, and widespread use and acceptance of registries in the medical world has allowed for research and quality improvement efforts using ‘big data’. Big data in vascul

https://www.lupop.lu.se/article/big-data-vascular-surgery-registries-international-collaboration-and-future-directions-0 - 2025-05-07

By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 10 March 2021 I forskningspropositionen Forskning, frihet, framtid – kunskap och innovation i Sverige, som kom i slutet av 2020, gör regeringen det tydligt att de vill påskynda omställningen till ett öppet vetenskapssystem. Forskningsdata som finansieras med offentliga medel ska göras tillgängliga ”så öppet som möjligt och så

https://www.lupop.lu.se/article/natverksnytt-fran-snd-fem-ar-ar-kortare-man-kan-tro-ledare - 2025-05-07

Published 19 April 2018 Registration is now open for the T1 and T5 DATA meeting which will take place on Thursday 3 May in Lundmarksalen in the Astronomy Building. Please register by noon on Thursday 26 April by emailing mbd [at] astro [dot] lu [dot] se with the subject “DATA 3 May Registration”. LOCATION: Lundmarksalen in the Astronomy Building. ·         09.00 - 09.30 Coffee in the foyer·       

https://www.lupop.lu.se/article/meeting-big-data - 2025-05-07

By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 15 March 2021 Den nationella färdplanen för öppen vetenskap antogs av Sveriges universitets- och högskoleförbunds (SUHF) förbundsförsamling den 10 mars 2021. Läs färdplanen här.

https://www.lupop.lu.se/article/nationell-fardplan-oppen-vetenskap - 2025-05-07

By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 18 March 2021 Foto från snd.gu.se Kan man dela forskningsdata med personuppgifter, och i så fall på vilket sätt? Vilka lagar och regler gäller, och vem är det som gör bedömningen från fall till fall? Det var frågor som engagerade deltagare under SND:s webbinarium ”Personuppgifter i forskningsdata – hur hanterar man dem i prakt

https://www.lupop.lu.se/article/delning-av-forskningsdata-med-personuppgifter-aktuellt-amne-som-engagerar - 2025-05-07

By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 18 March 2021 Read the article here.

https://www.lupop.lu.se/article/development-and-validation-prediction-model-estimate-10-year-risk-all-cause-mortality-using-modern - 2025-05-07

By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 22 March 2021 International classification of disease (ICD) codes used to study sarcoidosis have previously been validated in only one study. We aimed to determine the accuracy of ICD codes to identify true sarcoidosis diagnoses in Sweden. Read more here.

https://www.lupop.lu.se/article/positive-predictive-value-sarcoidosis-identified-administrative-healthcare-registry-validation-study - 2025-05-07