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Combining population-based administrative health records and electronic medical records for disease surveillance

Administrative health records (AHRs) and electronic medical records (EMRs) are two key sources of population-based data for disease surveillance, but misclassification errors in the data can bias disease estimates. Methods that combine information from error-prone data sources can build on the strengths of AHRs and EMRs. We compared bias and error for four data-combining methods and applied them t

https://www.lupop.lu.se/article/combining-population-based-administrative-health-records-and-electronic-medical-records-disease - 2025-11-02

Accounting for missing data in statistical analyses: multiple imputation is not always the answe

Missing data are unavoidable in epidemiological research, potentially leading to bias and loss of precision. Multiple imputation (MI) is widely advocated as an improvement over complete case analysis (CCA). However, contrary to widespread belief, CCA is preferable to MI in some situations. New publication in International Journal of EpidemiologyRead more here

https://www.lupop.lu.se/article/accounting-missing-data-statistical-analyses-multiple-imputation-not-always-answe - 2025-11-02

Establishing a regional paediatric registry improved the overview and detection of side effects in children on anticoagulants.

The use of oral anticoagulants is rarer in children than adults, but studies indicate that their paediatric use is increasing. Warfarin has been used in children, at the discretion of the treating physician, but both the number of children and the data on its use are limited New publication in Acta Paediatr.Read more here

https://www.lupop.lu.se/article/establishing-regional-paediatric-registry-improved-overview-and-detection-side-effects-children - 2025-11-02

Cancer therapy and risk of congenital malformations in children fathered by men treated for testicular germ-cell cancer: A nationwide register study

Because of the potential mutagenic effects of chemo- and radiotherapy, there is concern regarding increased risk of congenital malformations (CMs) among children of fathers with cancer. Previous register studies indicate increased CM risk among children conceived after paternal cancer but lack data on oncological treatment. Increased CM risk was recently reported in children born before paternal c

https://www.lupop.lu.se/article/cancer-therapy-and-risk-congenital-malformations-children-fathered-men-treated-testicular-germ-cell - 2025-11-02

FAIR data stewardship: Supporting FAIR data interoperability

A fully fledged 5-day training event which will provide the much needed foundational skills for competent data stewards and data managers in the Nordic countries with knowledge of the FAIR principles and their application. The course will be held by two trainers from GO-FAIR and provides a broad but fairly technical introduction to data stewardship. Read more here.

https://www.lupop.lu.se/article/fair-data-stewardship-supporting-fair-data-interoperability - 2025-11-02

Etikprövningsmyndigheten inför nytt ärendehanteringssystem

Etikprövningsmyndigheten lämnar nu det ärendehanteringssystem som utvecklats i Prisma för etikprövningar. Anledningen är att det inte ger det stöd som var avsikten. Nu upphandlas istället ett nytt system och ambitionen är att det nya ska finnas på plats under 2020. Tills dess kommer myndigheten använda en övergångslösning för att hantera etikprövningar. Prisma stängs för etikansökningar den 27 sep

https://www.lupop.lu.se/article/etikprovningsmyndigheten-infor-nytt-arendehanteringssystem - 2025-11-02

Evaluating selection bias in a population-based cohort study with low baseline participation: the LIFE-Adult-Study

Participation in epidemiologic studies is steadily declining, which may result in selection bias. It is therefore an ongoing challenge to clarify the determinants of participation to judge possible selection effects and to derive measures to minimise that bias. We evaluated the potential for selection bias in a recent population-based cohort study with low baseline participation and investigated r

https://www.lupop.lu.se/article/evaluating-selection-bias-population-based-cohort-study-low-baseline-participation-life-adult-study - 2025-11-02

Association between cerebral microbleeds and hypertension in the Swedish general population “Good Aging in Skåne” study

Cerebral microbleeds (CMB) on MRI are frequent in healthy aging individuals but precede ischemic and hemorrhagic stroke and dementia. Different etiologies have been suggested for nonlobar CMB, which have a stronger connection to hypertension (HT) than do lobar CMB. This study aimed to investigate the prevalence of CMB and the association between nonlobar/lobar CMB and different blood pressure (BP)

https://www.lupop.lu.se/article/association-between-cerebral-microbleeds-and-hypertension-swedish-general-population-good-aging - 2025-11-02

The validity of propensity score analysis using complete cases with partially observed covariates

In their simulation study, Choi et al. compared different methods for handling missing covariate data in the context of propensity score analysis. This study addressed an important question on how propensity score matching and weighting perform coupled with different methods handing missing data when a treatment effect is homogenous or heterogeneous. New publication in European Journal of Epidemio

https://www.lupop.lu.se/article/validity-propensity-score-analysis-using-complete-cases-partially-observed-covariates - 2025-11-02

The history in epidemiology

In thinking of the history of epidemiology, the map usually comes to mind before the calendar or the clock. During the nineteenth century, the study of the pattern and distribution of disease commonly suggested a terrain, a spatial ordering, that might align with environmental hazards, or later, with bacteriological threats. New publication in Internationa Journal of Epidemiology.Read more here

https://www.lupop.lu.se/article/history-epidemiology - 2025-11-02

The Long-Lasting Influenza: The Impact of Fetal Stress During the 1918 Influenza Pandemic on Socioeconomic Attainment and Health in Sweden, 1968–2012

The 1918 influenza pandemic had not only a massive instant death toll but also lasting effects on its survivors. Several studies have shown that children born in 1919, and thus exposed to the H1N1 virus in utero, experienced worse health and socioeconomic outcomes in older ages than surrounding birth cohorts. New publication in Demography.Read more here.

https://www.lupop.lu.se/article/long-lasting-influenza-impact-fetal-stress-during-1918-influenza-pandemic-socioeconomic-attainment - 2025-11-02

Utredare forskningsdata vid Stockholms universitetsbibliotek

Du kommer tillhöra forskningsdatagruppen och ha ditt huvudsakliga arbetsområde inom verksamhetsområdet publicerings- och forskarstöd i biblioteket. Du kommer samverka med kollegor i biblioteket som arbetar med liknande frågor. Eftersom arbetsområdet är universitetsövergripande kommer du också att samarbeta med andra forskningsstödjande avdelningar inom förvaltningen och direkt mot forskare. Läs me

https://www.lupop.lu.se/article/utredare-forskningsdata-vid-stockholms-universitetsbibliotek - 2025-11-02

VR-pengar till LU

Vetenskapsrådet har fattat beslut om vilka ansökningar som beviljats bidrag inom utlysningarna Bidrag till Forskningsmiljö inom registerbaserad forskning respektive Forskarskolor inom registerbaserad forskning 2019. Totalt har man beviljat 102 mkr för perioden 2020–2023, varav 13 mkr gick till lU-projektet "Användning av artificiell intelligens inom registerforskning (AIR Lund)". Läs mer här.

https://www.lupop.lu.se/article/vr-pengar-till-lu - 2025-11-02

European Prevention of Alzheimer's Dementia Registry: Recruitment and prescreening approach for a longitudinal cohort and prevention trials.

It is a challenge to find participants for Alzheimer's disease (AD) prevention trials within a short period of time. The European Prevention of Alzheimer's Dementia Registry (EPAD) aims to facilitate recruitment by preselecting subjects from ongoing cohort studies. This article introduces this novel approach. New publication in Alzheimers Dement.Read more here.

https://www.lupop.lu.se/article/european-prevention-alzheimers-dementia-registry-recruitment-and-prescreening-approach-longitudinal - 2025-11-02

Medication errors in primary health care records; a cross-sectional study in Southern Sweden

Drug-related problems due to medication errors are common and have the potential to cause harm. This study, which was conducted in Swedish primary health care, aimed to assess how well the medication lists in the medical records tally with the medications used by patients and to explore what type of medication errors are present. New publication in BMC Family Practice.Read more here.

https://www.lupop.lu.se/article/medication-errors-primary-health-care-records-cross-sectional-study-southern-sweden - 2025-11-02

National platform for Rare Diseases Data Registry of Japan

In Japan, the are approximately 300 projects conducting research on rare deseases supported by the Ministry of Health, Labour and Welfare of Japan (MHLW) and the japan Agency for Medical Research and Development (AMED). Diverse data, including clinical, genomic, and sample-related data, are generated by these projects. New publication in wileyonlinelibrary.comRead more here.

https://www.lupop.lu.se/article/national-platform-rare-diseases-data-registry-japan - 2025-11-02