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It is a challenge to find participants for Alzheimer's disease (AD) prevention trials within a short period of time. The European Prevention of Alzheimer's Dementia Registry (EPAD) aims to facilitate recruitment by preselecting subjects from ongoing cohort studies. This article introduces this novel approach. New publication in Alzheimers Dement.Read more here.

https://www.lupop.lu.se/article/european-prevention-alzheimers-dementia-registry-recruitment-and-prescreening-approach-longitudinal - 2025-10-30

Drug-related problems due to medication errors are common and have the potential to cause harm. This study, which was conducted in Swedish primary health care, aimed to assess how well the medication lists in the medical records tally with the medications used by patients and to explore what type of medication errors are present. New publication in BMC Family Practice.Read more here.

https://www.lupop.lu.se/article/medication-errors-primary-health-care-records-cross-sectional-study-southern-sweden - 2025-10-30

In Japan, the are approximately 300 projects conducting research on rare deseases supported by the Ministry of Health, Labour and Welfare of Japan (MHLW) and the japan Agency for Medical Research and Development (AMED). Diverse data, including clinical, genomic, and sample-related data, are generated by these projects. New publication in wileyonlinelibrary.comRead more here.

https://www.lupop.lu.se/article/national-platform-rare-diseases-data-registry-japan - 2025-10-30

The occurrence of thyroid cancer is increasing throughout the developed world and since the 1990s has become the fastest increasing malignancy. In 2014, a total of 2693 Australians and 302 New Zealanders were diagnosed with thyroid cancer, with this number projected to rise to 3650 in 2018. The purpose of this protocol is to establish a binational population-based clinical quality registry with th

https://www.lupop.lu.se/article/development-binational-thyroid-cancer-clinical-quality-registry-protocol-paper - 2025-10-30

Despite much literature on reference values of acid-base status in umbilical cord blodd of birth, there are as yet no studies perfomed to determine gestational age-dependent references in cord venous blood and no studies on preterm acid-base standards. Similary, the normal reference range of Apgar scores for term and preterm infants has not yet been determined.

https://www.lupop.lu.se/article/gestational-age-related-reference-values-apgar-score-and-umbilical-cord-arterial-and-venous-ph - 2025-10-30

Ekonomihögskolan bjuder in till en bokdiskussion kring boken Big Science i småstaden med fokus på framtida utmaningar, prioriteringar och forskningspolitiska strategier. Med en panel av kunniga och insiktsfulla personer, där även bokens författare ingår, diskuteras viktiga framtidsfrågor kring etableringen av ESS och MAX IV i Lund. Läs mer här.

https://www.lupop.lu.se/article/big-science-i-framtidens-lund - 2025-10-30

The importance of biobanks as a nexus for the development of future diagnostics and treatments in healthcare is becoming increasingly obvious. Increasingly biobanks are emerging as the backbone of medical research, yet the full potential of biobanks has yet to be reached. This conference is organized around the theme of the future of biobanks. The talks will seek to go beyond the current “state-of

https://www.lupop.lu.se/article/future-biobanking - 2025-10-30

SND har utsett en grupp bestående av konsortierepresentanter för att bilda ett DAU-råd. Rådets uppgift är att stärka samarbete och kommunikation mellan SND:s styrning, konsortium och nationella nätverk. Läs mer här.

https://www.lupop.lu.se/article/snd-starker-konsortiesamarbetet-med-dau-rad - 2025-10-30

SND söker forskningsdatarådgivare och senior rådgivare till kontoret i Göteborg. Läs mer om tjänsterna och ansök via länkarna nedan.• Forskningsdatarådgivare inriktning natur/teknik• Forskningsdatarådgivare inriktning medicin/hälsa• Senior rådgivare 

https://www.lupop.lu.se/article/nya-tjanster-att-soka-pa-snd - 2025-10-30

Clinical registries, which capture information about the health and healthcare use of patients with a health condition or treatment, often contain patient-reported outcomes (PROs) that provide insights about the patient’s perspectives on their health. Missing data can affect the value of PRO data for healthcare decision-making. We compared the precision and bias of several missing data methods whe

https://www.lupop.lu.se/article/impact-missing-data-bias-and-precision-when-estimating-change-patient-reported-outcomes-clinical - 2025-10-30

Registry-based medical research is an important tool in assessing health care interventions in the general population. Observational studies are used to establish effectiveness whereas randomized clinical trials assess efficacy in an experimental manner targeting a carefully selected population of patients. Medical registries may be office or hospital based, state/provincial, national, or more rec

https://www.lupop.lu.se/article/registry-based-medical-research-data-dredging-or-value-building-quality-care - 2025-10-30

Clinical auditing is an emerging instrument for quality assessment and improvement.Moreover, clinical registries facilitate medical research as they provide ‘real world’ data. It is importantthat entered data are robust and reliable. The aim of this study was to describe the evolving procedureand results of data verication within the Dutch Institute for Clinical Auditing (DICA). New publication i

https://www.lupop.lu.se/article/data-verification-nationwide-clinical-quality-registries - 2025-10-30

Liver cirrhosis is a risk factor for hepatocellular carcinoma (HCC). While the HCC risk is thought to be highest in hepatitis B and hepatitis C, the risk in other cirrhosis etiologies is not fully established. Therefore, we aimed to study the risk and outcome of HCC in alcoholic cirrhosis compared to cirrhosis of other etiologies, in Sweden. New publication in Scandinavian Journal of Gastroenterol

https://www.lupop.lu.se/article/risk-and-outcome-hepatocellular-carcinoma-liver-cirrhosis-southern-sweden-population-based-study - 2025-10-30

Want research in Europe to be more FAIR? Your views count! FAIRsFAIR Open Consultation is open. Read more here.

https://www.lupop.lu.se/article/fair-data-policies-and-practices - 2025-10-30

The conference theme, “Data by Design: Building a Sustainable Data Culture”, emphasizes two core values embedded in the culture of Gothenburg and Sweden: design and sustainability. Read more here.

https://www.lupop.lu.se/article/46th-annual-iassist-conference-gothenburg - 2025-10-30

Under seminariet presenterades den andra, kvantitativa, delstudien av forskares attityder till forskningskommunikation och öppen vetenskap. Studien bygger på enkätsvar från cirka 3 700 forskare vid svenska lärosäten. Se en inspelning av seminariet här.

https://www.lupop.lu.se/article/dialogseminarium-om-forskare-och-kommunikation - 2025-10-30

Selection bias affects Mendelian randomization investigations when selection into the study sample depends on a collider between the genetic variant and confounders of the risk factor–outcome association. However, the relative importance of selection bias for Mendelian randomization compared with other potential biases is unclear. New publication in International Journal of Epidemiology.Read more

https://www.lupop.lu.se/article/contextualizing-selection-bias-mendelian-randomization-how-bad-it-likely-be - 2025-10-30

Cross-sectional normative dual energy X-ray absorptiometry data in 1052 men aged 18–28 years New publication in BMC Musculoskeletal Disorders.Read more here.

https://www.lupop.lu.se/article/does-peak-bone-mass-correlate-peak-bone-strength - 2025-10-30

The European Medicines Agency (EMA) established the Patient Registry Initiative to explore ways of supporting the use of patient registries in generating high-quality data for regulatory decision making and to enable a systematic approach to their use. We review barriers and opportunities for using patient registries in medicines regulation. A key aspect is that early discussions between all parti

https://www.lupop.lu.se/article/barriers-and-opportunities-use-patient-registries-medicines-regulation - 2025-10-30

Soil-transmitted helminth infections have been found to be associated with child development. The objective was to investigate hemoglobin levels and malnutrition as mediators of the association between Ascaris infection and intelligence quotient (IQ) scores in children. New publication in Epidemiology.Read more here.

https://www.lupop.lu.se/article/bayesian-methods-exposure-misclassification-adjustment-mediation-analysis - 2025-10-30