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JPND project kickoff in Istanbul

Together with researchers from Germany, Canada, Turkey and the Czech Republic Åsa Petersén was awarded the JPND grant for the project Delineating the role of HTT Cis-Variants in the pathogenesis of Huntington disease. In Sweden the grant  is funded by Vetenskapsrådet, the Swedish Research Council, and Petersén was awarded SEK 2 500 000.To initiate the project, a kickoff meeting was held in Istanbu

https://www.huntington-research.lu.se/article/jpnd-project-kickoff-istanbul - 2025-09-25

RHS National meeting 2024

Åsa Petersén will participate in the HD patients' organization's national meeting later in September. The patients’ organization, RHS, is inviting you to the national meeting in Gothenburg on 26 September 2024. Åsa Petersén will give an overview of the current HD research and the day will include information on guidelines for physiotherapy, and much more. The meeting will be held in Swedish.Sign u

https://www.huntington-research.lu.se/article/rhs-national-meeting-2024 - 2025-09-25

Welcome to Petersén’s talk on psychiatric health in HD

Åsa Petersén is one of the lecturers at MultiPark Café in October. On Wednesday 16 October, at 17.00-19.00, MultiPark Café is hosting an evening with lectures on “Psychiatric health in neurodegenerative diseases”. Åsa Petersén will talk about “Psychiatric health in Huntington’s disease”.All talks are in Swedish.Link to the event on MultiPark’s website

https://www.huntington-research.lu.se/article/welcome-petersens-talk-psychiatric-health-hd - 2025-09-25

Petersén will give a talk on HD for young adults

The Swedish patients' organization RHS is arranging a weekend on Huntingon disease for young adults on 18-20 October 2024 in Karlstad. During the weekend there will be presentations on various topics, like genetic counselling, and the weekend also offers an opportunity to network with other young adults and to share experiences.Åsa Petersén will give a talk on HD research and present the latest up

https://www.huntington-research.lu.se/article/petersen-will-give-talk-hd-young-adults - 2025-09-25

Webinar on HD clinical trials

On 23 October 2024, Åsa Petersén will be moderating the webinar "Research insights: Latest updates on ongoing studies", arranged by the European Huntington Association. The webinar will give information on ongoing clinical trials in the Huntington disease field. Representatives from companies with ongoing trials, or finalized, will be participating.The European Huntington Association is an umbrell

https://www.huntington-research.lu.se/article/webinar-hd-clinical-trials - 2025-09-25

SAVE-THE-DATE: HD Information Evening, 7 April 2025

Huntington Disease Center in Lund is inviting you to an information evening on 7 April 2025, 18.00-20.30 in the Belfrage lecture hall on BMC D15 in Lund. The evening will include update on clinical trials and current research status in Sweden and internationally, as well as talks on different aspects on Huntington disease: from social interaction to difficulty swallowing, dysphagia. Representative

https://www.huntington-research.lu.se/article/save-date-hd-information-evening-7-april-2025 - 2025-09-25

Work in progress: International guidelines for treatment of psychiatric symptoms

Development of international guidelines for treatment of psychiatric symptoms in advanced Huntington's disease is in progress within the European Huntington's Disease Network (EHDN). The working group focusing on "Behavioural Phenotype” in Huntington's disease is addressing these guidelines. As part of the work, some members of the group recently met in Amsterdam, together with colleagues from USA

https://www.huntington-research.lu.se/article/work-progress-international-guidelines-treatment-psychiatric-symptoms - 2025-09-25

Podcast about being a young relative of an HD-patient

The month of May is Huntington’s Disease Awareness Month and 15 May was Huntington Awareness Day. Åsa Petersén was invited to take part in a podcast about the disease, together with Jozefine, who is a carrier of the gene and related to a person diagnosed with HD.The podcast is produced by YTAN, Young Together Against Neurodegenerative Diseases, a digital platform for young relatives of persons wit

https://www.huntington-research.lu.se/article/podcast-about-being-young-relative-hd-patient - 2025-09-25

New paper from TNU published!

The protein TDP-43 is involved in different neurodegenerative diseases, and Åsa Petersén and Sofia Bergh have investigated whether the protein harms the hypothalamus. Investigating if augmenting the quantity of the protein TDP-43 in the hypothalamus would lead to changes in the hypothalamus, emotional changes and metabolic problems was the aim of the new article from the TNU research group.Read mo

https://www.huntington-research.lu.se/article/new-paper-tnu-published - 2025-09-25

Petersén guest editor of Journal of Huntington's Disease

Åsa Petersén and Mahmoud A Pouladi are guest editors of the Special Issue: Glia and non-neuronal cells in Huntington's disease that was published now in August. The Special issue on Glia and non-neuronal cells in Huntington's disease holds six expert review articles. The understanding how glial and other non-neuronal cells shape HD pathology is expanding amongst researchers in the field.The topics

https://www.huntington-research.lu.se/article/petersen-guest-editor-journal-huntingtons-disease - 2025-09-25

Petersén gives a talk at a symposium on neurodegenerative disorders in Vancouver, Canada on Sept 8, 2025

Petersén will give a talk on her work on Huntington disease at a symposium on neurodegenerative disorders at the University of British Columbia in Vancouver, Canada on September 8, 2025. There will also be a meeting for Petersén and other partners in the JPND funded delCAA-HD research team to discuss progress of the international collaborative research efforts.

https://www.huntington-research.lu.se/article/petersen-gives-talk-symposium-neurodegenerative-disorders-vancouver-canada-sept-8-2025 - 2025-09-25

Visit by the European Huntington Association

When in Sweden for their annual meeting, members of the European Huntington Association paid a visit to Lund on 28 August 2025. There they met with Åsa Petersén and Camilla Svensson, registered nurse, also working at the HD Clinic at Skåne University Hospital (SUS) in Lund, together with Åsa. Åsa showed them around the lab, demonstrated samples and talked about her research. The EHA team also got

https://www.huntington-research.lu.se/article/visit-european-huntington-association - 2025-09-25

Sofia Bergh will present poster at TDP-43 conference

On 9-11 September 2025 the Arturo Falaschi Conference “2nd biennial conference on TDP-43 function and dysfunction in disease” will be held in Trieste, Italy. Sofia Bergh will present her poster with the findings published earlier this summer in the article “TDP-43 overexpression in the hypothalamus drives neuropathology, dysregulates metabolism and impairs behavior in mice”.Link to the conference

https://www.huntington-research.lu.se/article/sofia-bergh-will-present-poster-tdp-43-conference - 2025-09-25

Updated information on HD on the National Board of Health and Welfare's webpage

The National Board of Health and Welfare in Sweden has published updated information on Huntington disease on its’ webpage. These recent revisions of the text have been made by Professor Åsa Petersén, Lund University.Link to the National Board of Health and Welfare’s webpage – in Swedish only (opens in a new window).

https://www.huntington-research.lu.se/article/updated-information-hd-national-board-health-and-welfares-webpage - 2025-09-25

New LUCC Coordinator

A new LUCC Coordinator has been appointed by the Dean of Faculty of Medicine at Lund University. Professor Sophia Zackrisson has been appointed as the new LUCC coordinator for a 3-year period and she will replace Kristian Pietras as coordinator from March 1st 2021. Nomination of coordinator candidates took place during December 2020 until the end of February 2021 and the Dean of Faculty of Medicin

https://www.lucc.lu.se/internal/article/new-lucc-coordinator - 2025-09-25