By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 28 June 2021 Patient registries are an established methodology in health services research. Since more than 150 years, registries collect information concerning groups of similar patients to answer research questions. Elaborated recommendations about an appropriate development and an efficient operation of registries are avail

https://www.lupop.lu.se/article/recent-trends-patient-registries-health-services-research - 2025-08-07

By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 29 June 2021 Collaboration and the sharing of knowledge is at the heart of Open Science (OS). However, we need to know that the knowledge we find and share is really what it purports to be; and we need to know that the authors we hope to collaborate with are really the people they claim to be. Read the paper at https://direct.

https://www.lupop.lu.se/article/open-science-question-trust - 2025-08-07

By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 30 June 2021 Photo: Pixabay / Free-photos Here, we describe the new MSBase pregnancy, neonatal outcomes and women’s health registry. We provide the rationale for, and detailed description of, the variables collected within the registry, together with data acquisition details. Read the paper at https://journals.sagepub.com/doi/

https://www.lupop.lu.se/article/msbase-pregnancy-neonatal-outcomes-and-womens-health-registry - 2025-08-07

By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 1 July 2021 Generalizability methods are increasingly used to make inferences about the effect of interventions in target populations using a study sample. Most existing methods to generalize effects from sample to population rely on the assumption that subgroup-specific effects generalize directly. However, researchers may be

https://www.lupop.lu.se/article/generalizability-subgroup-effects - 2025-08-07

By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 2 July 2021 From Wikimedia Commons An estimated 40% of pregnancies globally are unintended. Measurement of pregnancy intention in low- and middle-income countries relies heavily on surveys, notably Demographic and Health Surveys (DHS), yet few studies have evaluated survey questions. Read the paper at https://pophealthmetrics.

https://www.lupop.lu.se/article/pregnancy-intention-data-completeness-quality-and-utility-population-based-surveys - 2025-08-07

By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 3 July 2021 Clinical registries that monitor and review outcomes for patients with cystic fibrosis have existed internationally for many decades. However, their purpose continues to evolve and now includes the capability to support clinical effectiveness research, clinical trials and Phase IV studies, and international data co

https://www.lupop.lu.se/article/redesign-australian-cystic-fibrosis-data-registry-multidisciplinary-collaboration - 2025-08-07

By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 4 July 2021 Photo from Manchester Metropolitan University The PARTNER project (Paediatric Rare Tumours Network - European Registry) was launched in 2016. PARTNER aims to create a European Registry dedicated to children and adolescents with very rare tumors (VRT). It links existing national registries and provides a registry fo

https://www.lupop.lu.se/article/european-paediatric-rare-tumours-network-european-registry-partner-project-very-rare-tumors-children - 2025-08-07

By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 5 July 2021 Photo: Pixabay / Gerd Altmann Systems models, which by design aim to capture multi-level complexity, are a natural choice of tool for bridging the divide between social epidemiology and causal inference. In this commentary, we discuss the potential uses of complex systems models for improving our understanding of q

https://www.lupop.lu.se/article/complex-systems-models-causal-inference-social-epidemiology - 2025-08-07

By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 6 July 2021 In this paper, we describe a newly developed estimation method that fits the additive hazards models to general two-phase sampling studies along with the R package addhazard that implements it. Read the paper at https://link.springer.com/article/10.1007/s10654-021-00739-3

https://www.lupop.lu.se/article/estimating-hazard-rate-difference-case-cohort-studies - 2025-08-07

By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 7 July 2021 We sought to understand why researchers do or do not regularly use DAGs by surveying practicing epidemiologists and medical researchers on their knowledge, level of interest, attitudes, and practices towards the use of causal graphs in applied epidemiology and health research. Read the paper at https://link.springe

https://www.lupop.lu.se/article/assessing-knowledge-attitudes-and-practices-towards-causal-directed-acyclic-graphs-qualitative - 2025-08-07

By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 8 July 2021 Photo: Pixabay / Arek Socha We propose to extend our previous approach for the joint analysis of marginal summary statistics to incorporate prior information via a hierarchical model (hJAM). Read the paper at https://doi.org/10.1093/aje/kwaa287

https://www.lupop.lu.se/article/hierarchical-approach-using-marginal-summary-statistics-multiple-intermediates-mendelian - 2025-08-07

By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 9 July 2021 Photo: Pixabay / Ben Kerckx The VALIDATE-SWEDEHEART trial was a registry-based randomized trial comparing bivalirudin and heparin in patients with acute myocardial infarction undergoing percutaneous coronary intervention. It showed no differences in mortality at 30 or 180 days. This study examines how well the tria

https://www.lupop.lu.se/article/assessing-external-validity-validate-swedeheart-trial - 2025-08-07

By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 10 July 2021 Photo: Pixabay / Ralf Kunze Aims: To estimate the prevalence of parental substance use disorder (PSUD) in the general population based on young adults' reports adjusted for non-participation using register-based indicators of PSUD. Read the paper at https://europepmc.org/article/med/33878599

https://www.lupop.lu.se/article/estimating-perceived-parental-substance-use-disorder-using-register-data-adjust-non-participation - 2025-08-07

By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 11 July 2021 A large cohort, consisting of versatile individual-level phenotype and genotype data, can be constructed by integrating data from several biobanks and health data registers in Finland. Co-operation with biobanks is straightforward. However, long time periods need to be reserved when biobank resources are linked wi

https://www.lupop.lu.se/article/integrating-data-multiple-finnish-biobanks-and-national-health-care-registers-retrospective-studies - 2025-08-07

By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 12 July 2021 Photo: flickr / agilemktg1 About 30 million people in the EU and USA, respectively, suffer from a rare disease. Driven by European legislative requirements, national strategies for the improvement of care in rare diseases are being developed. Read the paper at https://ojrd.biomedcentral.com/articles/10.1186/s13023

https://www.lupop.lu.se/article/how-design-registry-undiagnosed-patients-framework-rare-disease-diagnosis-suggestions-software-data - 2025-08-07

By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 13 July 2021 Photo: Pixabay / Colin Behrens In a prospective study, we sought to determine acceptability of linkage of administrative and clinical trial data among Canadian patients and Research Ethics Boards (REBs). The goal is to develop a more harmonized approach to data, with potential to improve clinical trial conduct thr

https://www.lupop.lu.se/article/canadian-prospective-study-linkage-randomized-clinical-trial-cancer-and-mortality-registry-data - 2025-08-07

By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 23 June 2021 Du kommer att samla in och ställa samman kunskap om forskningsdata och dess hantering i biobankskohorter, såväl i Umeå som nationellt. Målet är att peka ut förbättringsområden, för förbättrade och förenklade flöden för forskningen. Parallellt kommer du att arbeta med att ge konkret stöd till forskare inom olika bi

https://www.lupop.lu.se/article/umea-universitet-soker-forskningssamordnare-med-fokus-pa-processer-biobankers-forskningsdata - 2025-08-07

By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 24 June 2021 Photo: Pixabay / Leo2014 Detta forskningsprojekt syftar till att undersöka om det finns patientgrupper som behöver extra mycket resurser, och vad som i så fall skiljer dessa patienter från patienter som inte behöver lika stora resurser. Läs mer om studien på https://www.lupop.lu.se/resursfordelning-och-utfall-inom

https://www.lupop.lu.se/article/ny-studie-resursfordelning-och-utfall-inom-intensivvarden - 2025-08-07

By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 2 August 2021 Photo: Pixabay / Gerd Altmann Vi avser i detta projekt undersöka om vi med maskininlärning (artificiell intelligens, AI) kan träna en dator att känna igen mönster i akutpatienters data, såsom tidigare sjukdomar, läkemedelsanvändning, undersökningsresultat och sociala faktorer, för att sedan kunna förutsäga vilken

https://www.lupop.lu.se/article/ny-studie-maskininlarning-battre-diagnostik-och-behandling-av-vuxna-patienter-som-soker-sjukvard-pa - 2025-08-07

By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 2 August 2021 Photo: Pixabay / Brian Merrill We are looking for an assistant researcher in Epidemiology for work that is linked to a thematic collaborative initiative on improved pandemic preparedness that has received internal funding from Lund University 2021 – 2024. The initiative is a truly interdisciplinary collaboration

https://www.lupop.lu.se/article/new-position-assistant-researcher-epidemiology - 2025-08-07