Published 20 October 2020 Dementia was identified as a priority area for the development of a Clinical Quality Registry (CQR) in Australia in 2016. The Australian Dementia Network (ADNeT) Registry is being established as part of the ADNeT initiative, with the primary objective of collecting data to monitor and enhance the quality of care and patient outcomes for people diagnosed with either dement

https://www.lupop.lu.se/article/protocol-clinical-quality-registry-dementia-and-mild-cognitive-impairment-mci-australian-dementia - 2025-08-15

Published 21 October 2020 Independent disease registries for pre-and post-approval of novel treatments for rare diseases are increasingly important for healthcare professionals, patients, regulators and the pharmaceutical industry. Current registries for rare diseases to evaluate orphan drugs are mainly set up and owned by the pharmaceutical industry which leads to unacceptable conflicts of intere

https://www.lupop.lu.se/article/registries-orphan-drugs-generating-evidence-or-marketing-tools - 2025-08-15

Published 21 March 2018 Ragnar Söderbergs stiftelse finansierar projekt vid Stockholms och Lunds Universitet En framgångsrik digitalisering resulterar i ett unikt dataset som kastar nytt ljus på svensk industrihistoria. Planen är att göra datasetet offentligt, och bedömningen är att det kan bli internationellt uppmärksammat och användas i historiska studier av industrialisering.Läs mer här.

https://www.lupop.lu.se/article/projekt-att-digitalisera-svensk-industridata-beviljas-13-miljoner-kronor - 2025-08-15

Published 21 October 2020 Recruitment for Alzheimer's disease (AD)-focused studies, particularly prevention studies, is challenging due to the public's lack of awareness about study opportunities coupled with studies' inclusion and exclusion criteria, resulting in a high screen fail rate. Read more at https://pubmed.ncbi.nlm.nih.gov/32920626/

https://www.lupop.lu.se/article/alzheimers-prevention-registry-large-internet-based-participant-recruitment-registry-accelerate - 2025-08-15

Published 22 October 2020 Hypertension (HTN) has become a major public health problem which can cause serious complications when it is not well-controlled. Prevention and effective care of HTN require a population-based registry. Thus, establishing this registry can be used to collect comprehensive, timely, and reliable data on epidemiology cases. The aim is to create a registry for the collection

https://www.lupop.lu.se/article/improving-hypertension-surveillance-data-management-prospective-data-requirements-implementation - 2025-08-15

Published 22 October 2020 The risk of complications and medical consequences of type 2 diabetes are well known. Hospital costs have been identified as a key driver of total costs in studies of the economic burden of type 2 diabetes. Less evidence has been generated on the impact of individual diabetic complications on the overall societal burden. The objective of this study was to analyse costs of

https://www.lupop.lu.se/article/costs-diabetes-complications-hospital-based-care-and-absence-work-392200-people-type-2-diabetes-and - 2025-08-15

Published 23 October 2020 Non-Western immigrants to Europe are at high risk for type 2 diabetes. In this nationwide study including incident cases of type 2 diabetes, the aim was to compare all-cause mortality (ACM) and cause-specific mortality (CSM) rates in first- and second-generation immigrants with native Swedes. Read more at https://pubmed.ncbi.nlm.nih.gov/32979073/

https://www.lupop.lu.se/article/mortality-first-and-second-generation-immigrants-sweden-diagnosed-type-2-diabetes-10-year-nationwide - 2025-08-15

Published 23 October 2020 Several prediction models for falls/near falls in Parkinson’s disease (PD) have been proposed. However, longitudinal predictors of frequency of falls/near falls are poorly investigated. Therefore, we aimed to identify short- and long-term predictors of the number of falls/near falls in PD. Read more at https://link.springer.com/article/10.1007/s00415-020-10234-6

https://www.lupop.lu.se/article/longitudinal-prediction-falls-and-near-falls-frequencies-parkinsons-disease-prospective-cohort-study - 2025-08-15

Published 24 October 2020 The objective was to describe the epidemiology, bacteriology, clinical presentation, risk factors for endocarditis (IE), diagnostic workup, and outcome of patients with bacteremia caused by the non-influenzae Haemophilus, Aggregatibacter, Cardiobacterium, Eikenella, and Kingella genera (HACEK). A retrospective population-based cohort of patients with bacteremia collected

https://www.lupop.lu.se/article/epidemiology-bacteriology-and-clinical-characteristics-hacek-bacteremia-and-endocarditis-population - 2025-08-15

Published 24 October 2020 Higher socioeconomic status (SES) is associated with lower mortality, and this correlation has been confirmed using different indicators across several geographical settings. Nevertheless, the timing of the emergence of the SES gradient remains unclear. We used individual-level longitudinal data for a regional population in southern Sweden covering the period between 1813

https://www.lupop.lu.se/article/ses-inequalities-cause-specific-adult-mortality-study-long-term-trends-using-longitudinal-individual - 2025-08-15

Published 28 February 2020 Obesity represents a tremendous global health problem. Studies over the past decade have suggested that food addiction (FA), that is, physical cravings for certain foods – high in fat/sugar – and addiction-like overeating of these types of food, is a likely contributor to the obesity epidemic. New publication in Acta Neuropsychiatrica

https://www.lupop.lu.se/article/food-addiction-denmark-fadk-project-combined-survey-and-register-based-study - 2025-08-15

Published 29 February 2020 Genetic factors are important in determining breast density, and heritable factors account for 60% of the variation. Certain single nucleotide polymorphisms (SNPs) are associated with density and risk of breast cancer but the association with prognosis is not clear. New publication in Acta Radiologica

https://www.lupop.lu.se/article/association-single-nucleotide-polymorphisms-snps-breast-density-and-breast-cancer-survival-malmo - 2025-08-15

Published 29 February 2020 ncreasing life expectancy for people with an intellectual disability (ID) is resulting in more persons with cancer and a greater need for end-of-life (EoL) care. There is a need for knowledge of health care utilisation over the last year of life to plan for resources that support a high quality of care for cancer patients with ID. Therefore, the aims of the study were to

https://www.lupop.lu.se/article/end-life-care-among-older-cancer-patients-intellectual-disability-comparison-general-population - 2025-08-15

Published 1 March 2020 People with intellectual disability (ID) face considerable barriers to accessing psychiatric health care, thus there is a risk for health disparity. The aims of the present study were 1) to compare specialist psychiatric health care utilization among older people with ID to that with their age peers in the general population, taking into account demographic factors and co-mo

https://www.lupop.lu.se/article/specialist-psychiatric-health-care-utilization-among-older-people-intellectual-disability-predictors - 2025-08-15

Published 1 March 2020 Preterm birth (gestational age <37 weeks) has previously been associated with cardiometabolic and neuropsychiatric disorders into adulthood, but has seldom been examined in relation to sleep disorders. We conducted the first population-based study of preterm birth in relation to sleep-disordered breathing (SDB) from childhood into mid-adulthood. New publication in Internatio

https://www.lupop.lu.se/article/preterm-birth-and-risk-sleep-disordered-breathing-childhood-mid-adulthood - 2025-08-15

Published 28 February 2020 Har Du deltagit i mammografiscreeningen eller undersökts med brösttomosyntes i Malmö mellan 2004 och 2018 eller deltagit i mammografiscreening i Lund, Helsingborg eller Kristianstad mellan 2013 och 2018? Då kan dina uppgifter finnas i en ny studie vid Lunds universitet! Läs mer här.

https://www.lupop.lu.se/article/modernisering-av-brostcancerscreening - 2025-08-15

Published 2 March 2020 Pain is a common problem for individuals with cerebral palsy (CP). In Sweden, 95% of children and adolescents with CP are followed in a national follow-up programme (CPUP), which includes data on pain. The purpose of this study was to investigate the prevalence of pain based on age, sex, gross motor function and source of report (self or proxy). Pain intensity, pain site, an

https://www.lupop.lu.se/article/pain-children-and-adolescents-cerebral-palsy-cross-sectional-register-study-3545-individuals - 2025-08-15

Published 2 March 2020 The fragility index (FI) is a metric to evaluate the robustness of statistically significant results. It describes the number of patients who would need to change from a non-event to an event to change a result from significant to non-significant. This systematic survey aimed to evaluate the feasibility of applying the FI to findings related to anterior cruciate ligament (AC

https://www.lupop.lu.se/article/strength-numbers-fragility-index-studies-scandinavian-knee-ligament-registries - 2025-08-15

Published 3 March 2020 The British Cardiovascular Intervention Society (BCIS) percutaneous coronary intervention (PCI) registry is hosted by the National Institute of Cardiovascular Outcomes Research (NICOR) at Bart’s Heart Centre and collects clinical characteristics, indications, procedural details, and outcomes of all patients undergoing PCI in the UK. The data are used for audit and research t

https://www.lupop.lu.se/article/british-cardiovascular-intervention-society-registry-framework-quality-improvement-initiative-behalf - 2025-08-15

Published 3 March 2020 Distal radius fracture often compromises working ability, but clinical implications are less studied in men due to its lower incidence. This study therefore describes sick leave in men with distal radius fracture, specifically exploring the impact of patient- and fracture-related factors. New publication in Journal of Occupational Rehabilitation

https://www.lupop.lu.se/article/disability-and-pain-are-best-predictors-sick-leave-after-distal-radius-fracture-men - 2025-08-15