ICD codes are a highly reliable indicator of tumor location when the specific location code is entered in the EHR. However, non-specific side of colon ICD codes are present for a sizable minority of patients, and structured data alone may not be adequate to support testing of some research hypotheses. New publication in BMC Medical Research Methodology

https://www.lupop.lu.se/article/validation-diagnosis-codes-identify-side-colon-electronic-health-record-registry - 2025-08-25

This two-week course is divided into two separate course weeks. The course will be arranged as a retreat somewhere in Sweden. Travel costs and accommodation will be covered in relation to the educational activities. The target group is doctoral students (and those who have recently completed their doctoral education) involved in register-based research within their research training. Eligible appl

https://www.lupop.lu.se/article/key-concepts-and-principles-design-and-critical-interpretation-nordic-register-based-studies-0 - 2025-08-25

In conclusion, umbrella reviews provide a comprehensive overview of a specific research topic and are very helpful tools to evaluate the certainty of evidence. These systematic overviews are helpful for the translation of research findings into recommendations, and also for identifying new research directions. New publication in European Journal of Epidemiology

https://www.lupop.lu.se/article/critical-reflection-grading-certainty-evidence-umbrella-reviews - 2025-08-25

Chronic pain is a common, complex, and distressing problem that has a profound impact on individuals and society. It frequently presents as a result of a disease or an injury; however, it is not merely an accompanying symptom, but rather a separate condition in its own right, with its own medical definition and taxonomy. New publication in British Journal of Anaesthesia

https://www.lupop.lu.se/article/chronic-pain-review-its-epidemiology-and-associated-factors-population-based-studies - 2025-08-25

The development of paediatric critical care registries, a term we take to include national audits and research databases, has been instrumental in helping us understand the state of children’s critical care and thereby provide a platform for future improvement. Comprehensive datasets enable monitoring of activity and outcomes for audit, safety and service planning. New publication in Intensive Car

https://www.lupop.lu.se/article/doing-more-less-what-registry-data-tell-us-about-death-picu - 2025-08-25

Twin registries have developed as a valuable resource for the study of many aspects of disease and society over the years in many different countries. A number of these registries include large numbers of twins with data collected at varying information levels for twin cohorts over the past several decades. New publication in Cambridge Core

https://www.lupop.lu.se/article/twin-registries-moving-forward-and-meeting-future-review - 2025-08-25

VR har släppt datum för när de öppnar och stänger sina utlysningar 2020. Läs mer här.

https://www.lupop.lu.se/article/datum-vrs-utlysningar-2020 - 2025-08-25

För er som missade Registerforskning 2019 - nu finns presentationerna online! Läs mer här.

https://www.lupop.lu.se/article/registerforskning-2019-0 - 2025-08-25

Detta bidrag syftar till att stödja internationella samarbeten inom det europeiska programmet CHIST-ERA, som stödjer forskning inom informations- och kommunikationsteknologi (IKT). Sverige är via Vetenskapsrådet ett av de 24 länder som deltar i CHIST-ERA-utlysningen där forskning av högsta vetenskapliga kvalitet i internationell konkurrens premieras. Vetenskapsrådet deltar i utlysningen inom ämne

https://www.lupop.lu.se/article/ny-utlysning-fran-vetenskapsradet - 2025-08-25

Följande utlysningar från Vetenskapsrådet är nu öppna. Bidrag för aktiviteter inom MINT-ämnen vid nationella forskningsinfrastrukturer (Söks av organisation)Tage Erlanders gästprofessur (Söks av organisation)Bidrag till forskningsmiljö inom klinisk behandlingsforskningKonsolideringsbidrag (Skissansökan)Internationell postdokKerstin Hesselgrens gästprofessur (Söks av organisation)Olof Palmes gästpr

https://www.lupop.lu.se/article/nya-utlysningar-fran-vetenskapsradet-0 - 2025-08-25

The Research Unit of Exercise Epidemiology and the Centre of Childhood Health, Department of Sports Science and Clinical Biomechanics, University of Southern Denmark invites applications for a position as assistant professor in health sciences within Lifestyle Epidemiology. Read more here.

https://www.lupop.lu.se/article/assistant-professor-lifestyle-epidemiology - 2025-08-25

Major advances in cardiovascular medicine have been driven by innovations in basic research in biological and technical sciences. The subsequent testing in prospective randomized controlled trials (RCT) has provided the evidence underpinning the introduction of new, more effective, and safer treatments. New publication in European Heart Journal

https://www.lupop.lu.se/article/euroheart-european-unified-registries-heart-care-evaluation-and-randomized-trials - 2025-08-25

New publicatin in An International Journal of Obstetrics and Gynaecology

https://www.lupop.lu.se/article/surgical-registries-patient-reported-outcome-data-important-tools-monitoring-complications-after - 2025-08-25

As of 2019, Germany has still not been able to provide a national poisoning register and toxicovigilance for sufficient and reliable information on human exposure for the purpose of identification and assessment of toxic risk to the public. In particular, the USA acts as a special model, but France, the Netherlands, Switzerland, and Sweden also have efficient poisoning registers and toxicovigilanc

https://www.lupop.lu.se/article/national-poisoning-registers-and-toxicovigilance-different-countries-models-germany - 2025-08-25

More than 70% of patients with breast cancer present with node-negative disease, yet all undergo surgical axillary staging. We aimed to define predictors of nodal metastasis using clinicopathological characteristics (CLINICAL), gene expression data (GEX), and mixed features (MIXED) and to identify patients at low risk of metastasis who might be spared sentinel lymph node biopsy (SLNB). New publica

https://www.lupop.lu.se/article/prediction-lymph-node-metastasis-breast-cancer-gene-expression-and-clinicopathological-models - 2025-08-25

A major challenge in clinical research today is the difficulty that studies have in meeting recruitment goals. Up to 48% of studies do not meet accrual goals within the specified timeframe, significantly delaying the progress of projects and the dissemination of findings. This pervasive problem is a recruitment crisis. We developed a representative, ethnically and racially diverse research partici

https://www.lupop.lu.se/article/developing-and-launching-research-participant-registry - 2025-08-25

The National Spinal Cord Injury Registry of Iran (NSCIR-IR) is a not-for-profit, hospital-based, and prospective observational registry that appraises the quality of care, long-term outcomes and the personal and psychological burden of traumatic spinal cord injury in Iran. Benchmarking validity in every registry includes rigorous attention to data quality. New publication in Chinese Journal of Tra

https://www.lupop.lu.se/article/national-spinal-cord-injury-registry-iran-nscir-ir-critical-appraisal-its-strengths-and-weaknesses - 2025-08-25

Vascunet has previously published an international comparison of registry data within vascular surgery. Data validity and completeness in participating registries is essential for a meaningful interpretation of differences between countries. The Vascunet collaboration has therefore developed a methodology for validation of international vascular registry data, previously used for validation of two

https://www.lupop.lu.se/article/international-validation-danish-vascular-registry-karbase-vascunet-report - 2025-08-25

The use of clinical autopsy has been in decline for many years throughout healthcare systems of developed countries despite studies showing substantial discrepancies between autopsy results and pre-mortal clinical diagnoses. We conducted a study to evaluate over time the use and results of clinical autopsies in Sweden. We reviewed the autopsy reports and autopsy referrals of 2410 adult (age > 17)

https://www.lupop.lu.se/article/cause-death-and-significant-disease-found-autopsy - 2025-08-25

Inflammatory bowel disease (IBD) is a chronic, inflammatory relapsing disease with increasing incidence. IBD research and long-term follow-up of patients have, however, been hampered by lack of detailed data on disease phenotype, patient-reported outcome measures, Physician Global Assessment, disease activity, and hospital-administered drugs. New publication in Scandinavian Journal of Gastroentero

https://www.lupop.lu.se/article/swedish-inflammatory-bowel-disease-register-swibreg-nationwide-quality-register - 2025-08-25