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Utility of linking survey and registry data to evaluate interventions and policies to address disparities in breast cancer survivorship among young women

Cancer registry data, supplemented by patient surveys, can provide a broader understanding of the quality of care and financial impacts of breast cancer among young women. Read the full paper at https://doi.org/10.1016/j.evalprogplan.2021.101967

https://www.lupop.lu.se/article/utility-linking-survey-and-registry-data-evaluate-interventions-and-policies-address-disparities - 2025-10-27

The Danish Diabetes Musculoskeletal Cohort: Non-Responder Analysis of an Electronic Survey Using Registry Data

Our study found responder bias for age, but it did not exist for sex. Linking our sample frame to different national data registries, we determined that the characteristics of our non-responders were different from our responders on type of DM, CCI and SES. Read the paper at https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8180289/

https://www.lupop.lu.se/article/danish-diabetes-musculoskeletal-cohort-non-responder-analysis-electronic-survey-using-registry-data - 2025-10-27

Prediction or causality? A scoping review of their conflation within current observational research

Causal and prediction research usually require different methods, and yet their findings may get conflated when reported and interpreted. The aim of the current study is to quantify the frequency of conflation between etiological and prediction research, to discuss common underlying mistakes and provide recommendations on how to avoid these. Read the paper at https://link.springer.com/article/10.1

https://www.lupop.lu.se/article/prediction-or-causality-scoping-review-their-conflation-within-current-observational-research - 2025-10-27

Ny studie från Lunds universitet och Region Skåne: Bröstdiagnostik för global hälsa

Vi planerar en studie som kommer att belysa om man kan använda ett billigt, men tekniskt förstärkt, fickultraljud för att undersöka kvinnor med symptom från brösten. Målet är att utveckla en undersökningsmetod som kan möjliggöra att kvinnor i länder med begränsade resurser får tillgång till bröstdiagnostik. All information är sedan tidigare insamlad och Du behöver inte göra något ytterligare. Läs

https://www.lupop.lu.se/article/ny-studie-fran-lunds-universitet-och-region-skane-brostdiagnostik-global-halsa - 2025-10-27

The impact of data quality assurance and control solutions on the completeness, accuracy, and consistency of data in a national spinal cord injury registry of Iran (NSCIR-IR)

This study aimed to develop and evaluate a systematic arrangement for improvement and monitoring of data quality of the National Spinal Cord (and Column) Injury Registry of Iran (NSCIR-IR)—a multicenter hospital-based registry. Read the paper at https://www.nature.com/articles/s41394-020-00358-2

https://www.lupop.lu.se/article/impact-data-quality-assurance-and-control-solutions-completeness-accuracy-and-consistency-data - 2025-10-27

A far-reaching Regulation for the Italian National Registry of Implantable Prostheses: a possible model for other health registries

Our aim is to identify a few key issues to shape a far-reaching Regulation that might permit the flexible and dynamic functioning of RIPI (Regulation of the Italian Implantable Prostheses Registry) providing suggestions for other registries at national and international level. Read the paper at https://www.iss.it/documents/20126/0/ANN_21_02_04.pdf

https://www.lupop.lu.se/article/far-reaching-regulation-italian-national-registry-implantable-prostheses-possible-model-other-health - 2025-10-27

Different, yet strong together: the Nordic Arthroplasty Register Association (NARA)

The Nordic Arthroplasty Register Association (NARA) was established in 2007 by hip and knee arthroplasty registry leaders from Denmark, Norway, and Sweden. Purportedly, the idea of combining national databases was presented and discussed while sitting in a bar. Read the editorial at https://www.tandfonline.com/doi/full/10.1080/17453674.2021.1947006

https://www.lupop.lu.se/article/different-yet-strong-together-nordic-arthroplasty-register-association-nara - 2025-10-27

Study Designs for Extending Causal Inferences From a Randomized Trial to a Target Population

In this article, we examine study designs for extending (generalizing or transporting) causal inferences from a randomized trial to a target population. Specifically, we consider nested trial designs, where randomized individuals are nested within a sample from the target population, and nonnested trial designs, including composite data-set designs, where observations from a randomized trial are c

https://www.lupop.lu.se/article/study-designs-extending-causal-inferences-randomized-trial-target-population - 2025-10-27

Causal analyses of existing databases: no power calculations required

A key misunderstanding is the belief that the goal of a causal analysis is to “detect” an effect. Causal effects are not binary signals that are either detected or undetected; causal effects are numerical quantities that need to be estimated. Read the paper at https://www.sciencedirect.com/science/article/abs/pii/S0895435621002730

https://www.lupop.lu.se/article/causal-analyses-existing-databases-no-power-calculations-required - 2025-10-27

Agenda 2030: Postdoctoral researcher in Biodiversity and health

I ramverket kommer vi använda kunskap om biologisk mångfald, ekologiska processer, miljöpsykologi, och epidemiologi för att hitta en gemensam väg framåt för att bemöta dessa globala utmaningar i praktiken. Vi rekryterar nu tre postdoktorer som tillsammans kommer att koordinera forskningen i projektet. Läs mer och sök tjänsterna på https://lu.varbi.com/what:job/jobID:422401/

https://www.lupop.lu.se/article/agenda-2030-postdoctoral-researcher-biodiversity-and-health - 2025-10-27

Big data registries in spine surgery research: the lurking dangers

Spine surgery research has improved considerably over the last few decades. Its’ most recent growth is in large part due to the mounting increase in studies conducted using national databases and registries. With easy access to a large number of patients, the benefit of these registries has become evident. However, as with any research, this type of data must be used responsibly with the appropria

https://www.lupop.lu.se/article/big-data-registries-spine-surgery-research-lurking-dangers - 2025-10-27

Available positions at the Department of Public Health, Aarhus University

The Department of Public Health contributes to teaching in medicine, public health science, sport science and nursing. At the department, you will have approx. 200 colleagues, including 90 academic staff members and a corresponding number of PhD students. Available positions: Tenure Track Assistant Professor at the Department of Public Health Professor at the Department of Public Health

https://www.lupop.lu.se/article/available-positions-department-public-health-aarhus-university - 2025-10-27

A Real-World Rheumatology Registry and Research Consortium: The German RheumaDatenRhePort (RHADAR) Registry

The German RheumaDatenRhePort (RHADAR) registry encompasses a network of rheumatologists and researchers in Germany providing pseudonymized real-world patient data and allowing timely and continuous improvement in the care of RMD patients. Read the paper at https://www.jmir.org/2021/5/e28164

https://www.lupop.lu.se/article/real-world-rheumatology-registry-and-research-consortium-german-rheumadatenrheport-rhadar-registry - 2025-10-27

The role of kidney registries in expediting large-scale collection of patient-reported outcome measures for people with chronic kidney disease

In this editorial, we discuss the current state-of-play of PROMs collection by kidney registries and provide an overview of what is (un)known about the feasibility and effectiveness of PROMs in CKD and other conditions. Read the paper at https://academic.oup.com/ckj/article/14/6/1495/6173985

https://www.lupop.lu.se/article/role-kidney-registries-expediting-large-scale-collection-patient-reported-outcome-measures-people - 2025-10-27

SWEDEGENE—a Swedish nation-wide DNA sample collection for pharmacogenomic studies of serious adverse drug reactions

SWEDEGENE was established in 2008 and currently contains DNA and information from about 2550 adults who have experienced specific ADRs, and from 580 drug exposed controls. Read the paper at https://www.nature.com/articles/s41397-020-0148-3

https://www.lupop.lu.se/article/swedegene-swedish-nation-wide-dna-sample-collection-pharmacogenomic-studies-serious-adverse-drug - 2025-10-27

Bias Analysis Gone Bad

We identified 3 examples of suboptimal bias analysis, one for each common bias. For each, we describe the original research and its bias analysis, compare the bias analysis with good practices, and describe how the bias analysis and research findings might have been improved. Read the paper at https://academic.oup.com/aje/article/190/8/1604/6189735

https://www.lupop.lu.se/article/bias-analysis-gone-bad - 2025-10-27