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Nordic Health Registry-Based Research: A Review of Health Care Systems and Key Registries

The Nordic countries are Denmark, Finland, Iceland, Norway, and Sweden and comprise a total population of approximately 27 million. The countries provide unique opportunities for joint health registry-based research in large populations with long and complete follow-up, facilitated by shared features, such as the tax-funded and public health care systems, the similar population-based registries, a

https://www.lupop.lu.se/article/nordic-health-registry-based-research-review-health-care-systems-and-key-registries-0 - 2025-10-01

Covid-forskning från Lunds universitet

En studie rörande effekter av åldersspecifika rekommendationer i samband med Covid-19-pandemin, i vilken flera forskare från Lunds universitet medverkat, har nyligen publicerats "pre-print" och i samband med detta uppmärksammats i diverse media. Preprint-artikeln finns att läsa på https://doi.org/10.1101/2021.07.22.21260973. En intervju med en av medförfattarna (Tove Fall) sändes i TV4 5 augusti,

https://www.lupop.lu.se/article/covid-forskning-fran-lunds-universitet - 2025-10-01

The impact of COVID-19 pandemic on vascular registries and clinical trials

Quality improvement programs and clinical trial research experienced disruption due to the coronavirus disease 2019 (COVID-19) pandemic. Vascular registries showed an immediate impact with significant declines in second-quarter vascular procedure volumes witnessed across Europe and the United States. To better understand the magnitude and impact of the pandemic, organizations and study groups sent

https://www.lupop.lu.se/article/impact-covid-19-pandemic-vascular-registries-and-clinical-trials - 2025-10-01

Open position: Professor at the Department of Public Health

he Department of Public Health, Faculty of Health, Aarhus University invites applications for one to three positions as full professor in research fields of relevance for the Department of Public Health including research related to Biostatistics, Epidemiology, General Practice, Nursing, Public Health Science, Sports Science, Toxicology or Occupational Medicine. The positions are permanent full-ti

https://www.lupop.lu.se/article/open-position-professor-department-public-health - 2025-10-01

Accurate population-based model for individual prediction of colon cancer recurrence

Prediction models are useful tools in the clinical management of colon cancer patients, particularly when estimating the recurrence rate and, thus, the need for adjuvant treatment. However, the most used models (MSKCC, ACCENT) are based on several decades-old patient series from clinical trials, likely overestimating the current risk of recurrence, especially in low-risk groups, as outcomes have i

https://www.lupop.lu.se/article/accurate-population-based-model-individual-prediction-colon-cancer-recurrence - 2025-10-01

Utredning föreslår ny myndighet för att samla digital infrastruktur

Den 11 augusti höll regeringen pressträff för att presentera resultatet av utredningen Organisation, styrning och finansiering av forskningsinfrastruktur. Utredningen har letts av Tobias Krantz och föreslår olika sätt att utveckla och stärka svensk forskningsinfrastruktur, bland annat genom att inrätta en ny myndighet med ansvar över digital infrastruktur. En sammanfattning av utredningen finns på

https://www.lupop.lu.se/article/utredning-foreslar-ny-myndighet-att-samla-digital-infrastruktur - 2025-10-01

Coding practice in national and regional kidney biopsy registries

Kidney biopsy registries all over the world benefit research, teaching and health policy. Comparison, aggregation and exchange of data is however greatly dependent on how registration and coding of kidney biopsy diagnoses are performed. This paper gives an overview over kidney biopsy registries, explores how these registries code kidney disease and identifies needs for improvement of coding practi

https://www.lupop.lu.se/article/coding-practice-national-and-regional-kidney-biopsy-registries - 2025-10-01

The rise of registry-based research: a bibliometric analysis

The main purpose of arthroplasty registries is to collect information on patients, techniques, and devices to monitor and improve the outcome of the specific procedure. This study analyses the role played by registries in the orthopedic research community and describes publication trends, characteristics, and patterns of this field of research. Read the full paper at https://www.tandfonline.com/do

https://www.lupop.lu.se/article/rise-registry-based-research-bibliometric-analysis - 2025-10-01

Utility of linking survey and registry data to evaluate interventions and policies to address disparities in breast cancer survivorship among young women

Cancer registry data, supplemented by patient surveys, can provide a broader understanding of the quality of care and financial impacts of breast cancer among young women. Read the full paper at https://doi.org/10.1016/j.evalprogplan.2021.101967

https://www.lupop.lu.se/article/utility-linking-survey-and-registry-data-evaluate-interventions-and-policies-address-disparities - 2025-10-01

The Danish Diabetes Musculoskeletal Cohort: Non-Responder Analysis of an Electronic Survey Using Registry Data

Our study found responder bias for age, but it did not exist for sex. Linking our sample frame to different national data registries, we determined that the characteristics of our non-responders were different from our responders on type of DM, CCI and SES. Read the paper at https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8180289/

https://www.lupop.lu.se/article/danish-diabetes-musculoskeletal-cohort-non-responder-analysis-electronic-survey-using-registry-data - 2025-10-01

Prediction or causality? A scoping review of their conflation within current observational research

Causal and prediction research usually require different methods, and yet their findings may get conflated when reported and interpreted. The aim of the current study is to quantify the frequency of conflation between etiological and prediction research, to discuss common underlying mistakes and provide recommendations on how to avoid these. Read the paper at https://link.springer.com/article/10.1

https://www.lupop.lu.se/article/prediction-or-causality-scoping-review-their-conflation-within-current-observational-research - 2025-10-01

Ny studie från Lunds universitet och Region Skåne: Bröstdiagnostik för global hälsa

Vi planerar en studie som kommer att belysa om man kan använda ett billigt, men tekniskt förstärkt, fickultraljud för att undersöka kvinnor med symptom från brösten. Målet är att utveckla en undersökningsmetod som kan möjliggöra att kvinnor i länder med begränsade resurser får tillgång till bröstdiagnostik. All information är sedan tidigare insamlad och Du behöver inte göra något ytterligare. Läs

https://www.lupop.lu.se/article/ny-studie-fran-lunds-universitet-och-region-skane-brostdiagnostik-global-halsa - 2025-10-01

The impact of data quality assurance and control solutions on the completeness, accuracy, and consistency of data in a national spinal cord injury registry of Iran (NSCIR-IR)

This study aimed to develop and evaluate a systematic arrangement for improvement and monitoring of data quality of the National Spinal Cord (and Column) Injury Registry of Iran (NSCIR-IR)—a multicenter hospital-based registry. Read the paper at https://www.nature.com/articles/s41394-020-00358-2

https://www.lupop.lu.se/article/impact-data-quality-assurance-and-control-solutions-completeness-accuracy-and-consistency-data - 2025-10-01

A far-reaching Regulation for the Italian National Registry of Implantable Prostheses: a possible model for other health registries

Our aim is to identify a few key issues to shape a far-reaching Regulation that might permit the flexible and dynamic functioning of RIPI (Regulation of the Italian Implantable Prostheses Registry) providing suggestions for other registries at national and international level. Read the paper at https://www.iss.it/documents/20126/0/ANN_21_02_04.pdf

https://www.lupop.lu.se/article/far-reaching-regulation-italian-national-registry-implantable-prostheses-possible-model-other-health - 2025-10-01

Different, yet strong together: the Nordic Arthroplasty Register Association (NARA)

The Nordic Arthroplasty Register Association (NARA) was established in 2007 by hip and knee arthroplasty registry leaders from Denmark, Norway, and Sweden. Purportedly, the idea of combining national databases was presented and discussed while sitting in a bar. Read the editorial at https://www.tandfonline.com/doi/full/10.1080/17453674.2021.1947006

https://www.lupop.lu.se/article/different-yet-strong-together-nordic-arthroplasty-register-association-nara - 2025-10-01

Study Designs for Extending Causal Inferences From a Randomized Trial to a Target Population

In this article, we examine study designs for extending (generalizing or transporting) causal inferences from a randomized trial to a target population. Specifically, we consider nested trial designs, where randomized individuals are nested within a sample from the target population, and nonnested trial designs, including composite data-set designs, where observations from a randomized trial are c

https://www.lupop.lu.se/article/study-designs-extending-causal-inferences-randomized-trial-target-population - 2025-10-01

Causal analyses of existing databases: no power calculations required

A key misunderstanding is the belief that the goal of a causal analysis is to “detect” an effect. Causal effects are not binary signals that are either detected or undetected; causal effects are numerical quantities that need to be estimated. Read the paper at https://www.sciencedirect.com/science/article/abs/pii/S0895435621002730

https://www.lupop.lu.se/article/causal-analyses-existing-databases-no-power-calculations-required - 2025-10-01