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We report the development of a new disease registry on SMA as the result of a collaboration among three national networks in United States, Italy, and United Kingdom in partnership with a biotechnology company and with the support of advocacy groups. New publication in Neuromuscular Disorders
https://www.lupop.lu.se/article/development-academic-disease-registry-spinal-muscular-atrophy - 2025-10-03
Screening for abdominal aortic aneurysm (AAA) in elderly men reduces aneurysm related mortality. AAA is commonly defined as an infrarenal aortic diameter (IAD) of ≥30 mm, which is based on the definition of an arterial aneurysm as a focal dilation of 150% or more compared to the expected diameter of about 20 mm. The IAD has been shown to correlate to body surface area (BSA). The aim of this study
Analysing personal data is a privilege requiring researchers to safeguard data and to use data wisely. Safeguarding data means protecting the identity of individuals. Using data wisely means using, reusing, and sharing data to their maximum potential. More researchers should be given safe access to previously collected data from expensive clinical trials and laboratory or epidemiological studies.
https://www.lupop.lu.se/article/sharing-data-safely-while-preserving-privacy - 2025-10-03
Two LUPOP-related population research projects on sustainable living environments receive funding from FORMAS Read more about the cooperation beteen CASE and EPI@LUND here, and about Health promoting Environments for an Aging Population here.
https://www.lupop.lu.se/article/formas-funding-lund-university - 2025-10-03
FoU-handboken för statliga myndigheter är tänkt att vara ett stöd för dig som arbetar med forskning och utveckling på en svensk myndighet. Den innehåller tips och råd om hur du bäst planerar, implementerar och utvärderar forskningsinsatser och enskilda forskningsprojekt. Innehållet i handboken är resultatet av flera års arbete och diskussioner i Nätverket för FoU-myndigheter. Läs mer här.
https://www.lupop.lu.se/article/kvalitet-implementering-och-nytta-en-handbok - 2025-10-03
Report from the Swedish Research Council (VR) In this report, the Swedish Research Council presents challenges and ways forward for the Swedish research system. The report is based on the report Direction to the Future Swedish Research System published in 2015, and is intended to constitute underlying documentation for the Swedish Research Council’s upcoming work and input into Sweden’s research p
https://www.lupop.lu.se/article/future-choices-swedish-research-system - 2025-10-03
I Swepub redovisas forskningspublikationer som har tagits fram vid svenska lärosäten och forskande myndigheter. För närvarande innehåller Swepub referenser till de publikationer som finns registrerade i ett fyrtiotal svenska lärosätens och andra myndigheters publiceringsdatabaser. Läs mer här.
https://www.lupop.lu.se/article/svenska-listan-ett-register-over-sakkunniggranskade-publiceringskanaler-i-swepub - 2025-10-03
VR har tagit fram en modell som de ska använda för att göra nationella utvärderingar av forskningens kvalitet och betydelse inom olika forskningsämnen. Under 2020 gör man en pilotutvärdering för att testa modellen. Då utvärderas svensk forskning inom statsvetenskap. Läs mer här.
https://www.lupop.lu.se/article/nationella-utvarderingar-av-forskningens-resultat - 2025-10-03
No, it's not that bad. Just some light listening about epidemiology, lung cancer and journalist-researcher interaction. Listen to the podcast here.
https://www.lupop.lu.se/article/headline-might-kill-you - 2025-10-03
It is now possible to apply for grants for international post doc position, conference organization, and NOP-HS for nordic scientific journals Internationell postdok – ger nydisputerade forskare med doktorsexamen från svenskt universitet möjlighet att forska utomlands.Konferensbidrag – främjar internationellt forskningssamarbete och erfarenhetsutbyte. Att ge forskare verksamma i Sverige möjlighet
https://www.lupop.lu.se/article/vr-announces-new-grants - 2025-10-03
The Research Unit of Epidemiology, Biostatistics and Biodemography, Department of Public Health, University of Southern Denmark (SDU), invites applications for 1-2 fulltime positions as associate professors in epidemiology or biostatistics. Read more here.
https://www.lupop.lu.se/article/1-2-associate-professors-epidemiology-or-biostatistics - 2025-10-03
European researchers are calling for data sharing Read more here.
https://www.lupop.lu.se/article/data-must-be-shared-also-researchers-outside-europe - 2025-10-03
Issues surrounding data sharing Read more here.
https://www.lupop.lu.se/article/sharing-data-safely-while-preserving-privacy-0 - 2025-10-03
About 50% of patients with Crohn’s disease (CD) and about 20% of those with ulcerative colitis (UC) undergo surgery at some point during the course of the disease. The diagnostic validity of the Swedish National Patient Register (NPR) has previously been shown to be high for inflammatory bowel disease (IBD), but there are little data on the validity of IBD-related surgical procedure codes. New pub
The incidence of JIA in this well-defined, population-based cohort is slightly lower than in previously published studies from Scandinavia. The need for orthopedic surgery and the presence of uveitis are diminished compared to studies with patients diagnosed more than 20 years ago. Children with JIA however still experience disease activity more than 50% of the time. In conclusion, we still have l
https://www.lupop.lu.se/article/outcome-juvenile-idiopathic-arthritis-population-based-study-sweden - 2025-10-03
The Lone Star Stroke Consortium Telestroke Registry (LeSteR) currently consisting of 3 academic hub centres and 27 partner spokes is a statewide initiative organised by leading academic health centres in the State of Texas to understand practice patterns of acute stroke management via telestroke (TS) in Texas, a state with one of the largest rural populations in the USA. New publication in BMJ Ope
We aimed to determine the relationship between handgrip strength, smoking, and alcohol consumption in young men and fracture risk at middle age. Thus, we carried out a cohort study including young men undergoing conscription examination in Sweden from September 1969 to May 1970 at a typical age of 18 years. Data on muscle strength, height, weight, and lifestyle factors were linked to the National
It supports four cancer modules: pancreatic, oesophagogastric, biliary and primary liver cancer. The pancreatic cancer (PC) module was the first module to be implemented, with others being established in a staged approach. Individuals are recruited to the registry if they are aged 18 years or older, have received care for their cancer at a participating public/private hospital or private clinic in
Identifying variables predictive of acute myocardial infarction (AMI) in women is important. The use of the ratio of total cholesterol-to-high density lipoprotein cholesterol (TC/HDL-C) is often overlooked. The aim was to study TC/HDL-C in relation to later AMI, in a large sample of women, adjusted for age, educational status, smoking, waist-hip ratio, blood pressure, and neighbourhood socioeconom
Datainspektionen (The Swedish Data Protection Authority) will change its name to integritetsskyddsmyndigheten and receive increased funding. The 30 million SEK increase in funding is primarliy aimed towards working with issues regarding personal integrity and the implications of the GDPR for the government sector, private companies and the general public. The agency will also monitor the developem
https://www.lupop.lu.se/article/datainspektionen-will-recieve-more-funding-and-change-name - 2025-10-03
